We collect information directly from you, when you give it to us by filling in forms, over the telephone, face to face, on your mobile phone or on our website. This includes information you provide to our local volunteer groups. We get some information about you from third parties, for example when you enter an event organised by someone else and choose to fundraise for us. We also collect some extra data about you from other sources.
Information we collect directly from you
When you provide us with your information directly, we usually ask you for your name, address and contact details. If you are making a donation to us or buying something from our shop, we will also collect your banking or credit card details and may ask for information about your tax status for Gift Aid. Often we also ask why you have chosen to support us, as that helps us understand how we can meet your needs.
Where we are delivering services to you (for example through our telephone helpline, events, community outreach, education and advocacy work) providing you with information about our work or when you take part in one of our campaigns, we regularly ask you for more information. This may be about about your health, for example what type of diabetes you have, to make sure we send you information which is right for you. It can also help us to have health, dietary and disability information about you if we need to make changes to meet your needs, like sending you audio publications or providing hypo kits at events we run. We sometimes also ask about your ethnicity to make sure we are reaching a diverse audience and because ethnicity increases your risk of Type 2 diabetes.
We work with the NHS and other organisations to improve the care and services which people living with diabetes receive. To do this, we periodically ask people living with diabetes to take part in surveys or audits about their experience and the care they receive. If you agree to take part, we will give you more details about how your information will be used and shared at the time.
If you volunteer for us, we may also collect details about your contact details, age, gender, skills and experience, emergency contact details, references, ethnic origin and criminal convictions.
If you come to an event, meeting or workshop that we run, we will often take photos to illustrate articles about them or for our future marketing. You can always opt out of this by letting the organiser know. We’ll ask you for your consent before using any close-ups or photos that are likely to identify you, but it’s often not practical to get everyone’s consent for a group shot, for example at a walking event or at a large conference.
Information we collect from you on our websites, social media sites and apps
Our Know Your Risk online tool collects information about your gender, age, ethnic background, body shape and blood pressure to give you a score for your risk of developing Type 2 diabetes in the next 10 years. This information is kept separately from any other information you may give us and is only used by us for statistical and trend analysis.
We use a number of interactive online tools to deliver education and support to you. Some of these ask you to give extra details about your personal health and ethnicity as well as extra information about you like your diabetes type, age, gender and date of diagnosis. This is so we can provide you with educational content which is relevant, clinically accurate and suitable for you.
The Diabetes UK Support Forum gives people the chance to share their experiences of living with diabetes and ask any questions. The forum is open to the public and anyone using our website has access to the posts you make, although we do moderate it to try to make sure it is a safe and supportive space. Please see our Acceptable Use policy for more information.
This includes allowing us to:
- recognise you when you visit our site more than once
- identify what device you used to access the site
- how you came to our site
- what pages you looked at or what action you took
- what pages are most popular
- save any of your personalised settings.
Please note that even if you change your preferences with us, you will still see some content from us on social media, as the social media site will choose content for you based on other reasons. When you visit our social media pages (including Facebook, Instagram, Twitter), the owner of that site will usually place cookies on your device. You can choose whether to allow this by changing your social media or browser preferences – see our Cookies Policy for details.
We also may periodically offer you the opportunity to take part in user experience testing via our website. See user experience research for further details.
Information we get from other sources
If you’ve given permission to third parties to give us your data, we will sometimes receive information about you from them. For example, when you sign up to an event run by a third party, like running a race, and choose to fundraise for us, we can receive information about you from the race organisers or any fundraising sites you use like JustGiving, if you’ve agreed they can share that information with us. Social media sites like Facebook, WhatsApp and Google can also share your data with third parties, including us, depending on the settings you’ve chosen on those sites.
We also collect a limited amount of extra information about you from public and private sources, to give us a better idea of what you’re interested in. This can include checking we’ve got your correct postal address from Royal Mail. We might collect demographic data like age, using commercially available survey data and databases like ACORN and the Eden Stanley Health & disability tracker to predict some information about you or people similar to you. Examples of information we may get are predictions about your likely purchasing behaviour, motivations, attitudes, media usage, leisure interests, how you engage with charities and indicators of financial status like house value. This analysis will be based on your postcode and doesn’t relate to you on an individual level. You can find out more about how we use this information to serve you better in the understanding our beneficiaries and supporters better section.
We want to give everyone a great fundraising experience. To do this we sometimes use information about your resources, positions of responsibility in the public, private and third sector, location, charitable interests and likelihood to give, personal interests and any other relevant information to help us tailor communications and make sure we get in touch with the right invites and suggestions.
We collect information we can find on publicly available and free sources for this purpose, like Companies House, other public registers, Who’s Who, newspaper, magazine and internet articles. We always check that our resources are reliable and verified.
We receive information about legacies which have been left to us through an automatic notification service. This draws information from grants of probate, which are public documents, and allows us to get in touch with executors to make sure we receive legacies intended for us. We’ll only use executors’ details for this purpose and we won’t send them any other information unless requested.
If we have reason to think that someone who has never been in touch with us before could be interested in our cause, we will collect basic information on them from publicly available, reliable sources. We may have read their story on a newspaper or know about them through our staff or major supporters. Once we know a bit more about them, if we believe they might be interested we do our best to get in touch with them, and we will usually do this within a month, at which point we will provide more information about how we use the data.
We provide age-appropriate information for children and young people living with diabetes on our website. We sometimes receive limited data about children if they decide to fundraise for us, and we will collect data about children for events we organise specifically for young people and their families or where they agree to volunteer for us. Wherever possible, we will ask for consent from parents to collect information about children and young people. When we take photos of children at to our events, we’ll always ask parents if we can use the images.
When we work with third party suppliers or customers we will usually collect limited contact details for key staff at that supplier or customer. These are only used for managing our business relationship with that supplier or customer.